We are always glad to hear from you.
Our helpline
If you would like information or support on muscle-wasting conditions, please call our Information and Support Team on our free helpline 0800 652 6352 Monday to Friday 10am to 2pm, or email info@musculardystrophyuk.org.
We’ve had to reduce the hours now that we’re in another national lockdown, to make sure our team can continue to support callers in a confidential environment. If you call and the team is unable to answer your call, they will pick up voice messages. Leave your name and number and one of our team will get back to you when they can, even if it’s outside of those hours.
Our fundraising hotline
If you would like information or support with fundraising or you’d like to donate, please call our central fundraising hotline: 0300 012 0172 (Mon-Fri, 9am–5pm)
Our research line
If you would like to understand more about the research into your condition or have any research or science-related questions you want answered, please call our research line today on 0207 803 4813 (Mon-Fri, 9am-5pm)
Write to us
Muscular Dystrophy UK
32 Ufford Street
London
SE1 8QD
Questions for specific teams
If you have a particular question, please use the details below to contact the team who can best help you:
Muscular Dystrophy UK’s helpline is a confidential service, we want you to feel safe when you talk to us. We would only need to share what you tell us with someone if:
- you ask us to get you help because you can’t do this yourself
- we believe someone else is at risk of serious harm
- we are told about acts of terrorism or bomb warnings
- you are under 18 and we think you are at risk of serious harm
- you are over 18 and have told us your name and where you are, and we think you or someone else are at risk of serious harm
We always want to give you as much control as possible, and will explain our policy to you and tell you if we feel we might need to contact emergency services to help you access support.
If you contact us by phone we will be able to see your phone number, and might use this if one of the situations listed above comes us. If you prefer to remain completely anonymous you might want to withhold your number before calling.
If you contact us by email we will be able to see your email address and your IP address. Please let us know if you would like your contact details to be stored on our database. By being on our database you will receive up to date news, information and notification of events via email.
The only time we will break confidentiality is if we suspect one of the above – in this instance we may contact one of the emergency services. If you have not provided us with your location but have previously consented to us holding your details we may use these to pass on your details to emergency services to support you.
We may also notify your health professional if you have consented to giving us their details.
Anonymised details of queries, such as age and query topic, are kept to help us develop the service and raise funds to keep it going.
For free advice and support getting the care, support and equipment you’re entitled to
08006526352
Email: info@musculardystrophyuk.org
For questions about our fundraising appeals, lottery or raffle
0207 803 4818 Email: reply@musculardystrophyuk.org
For information about Joseph Patrick Trust grants
020 7803 4811
Email: JPTgrants@musculardystrophyuk.org
PLEASE NOTE: Due to the ongoing situation with COVID-19, the Muscular Dystrophy UK Press Team is working remotely and is at limited capacity. We are still dealing with media queries, which you can direct to us as below. We are unable to access voicemails during this time, so please do try again if you are unable to get through in the first instance.
Muscular Dystrophy UK’s Press Team is here to help media professionals with all enquiries.
We can help with information about the charity’s work, about muscle-wasting conditions and the people affected by them, about research, campaigns, events and more.
For this – or anything else – please get in touch.
For all media enquiries: 0207 803 2870
Email: pressoffice@musculardystrophyuk.org
For support from our Regional Development Managers, including Family Funds and organising your own fundraiser
0300 012 0172
Email: volunteerfundraising@musculardystrophyuk.org
If you are a supporter with a question about research or clinical trials, please email: research@musculardystrophyuk.org
If you are a researcher with a query about our grants, please email researchgrants@musculardystrophyuk.org
For enquiries about our online shop (including questions about your order) 0300 102 3222 (Monday to Friday, 9am – 5pm)
Email: shop@musculardystrophyuk.org
For questions about volunteering, including opportunities at our London office
0300 012 0172
Email: volunteering@musculardystrophyuk.org
For complaints or comments about any aspect of our work, please call us on 020 7803 4800, contact us by email at info@musculardystrophyuk.org or write to us at: Muscular Dystrophy UK, 61A Great Suffolk Street, London SE1 0BU.